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Home » What’s New » September Is Usher Syndrome Awareness Month—What You Need to Know If You’re Losing Night or Side Vision 

September Is Usher Syndrome Awareness Month—What You Need to Know If You’re Losing Night or Side Vision 

This September marks Usher Syndrome Awareness Day on the 20th—a time to recognize a condition that impacts both hearing and sight. You may remember the striking 2024 campaign in Times Square, where massive billboards spotlighted real people living with Usher syndrome. The condition is more common than many realize—and if you’re having trouble seeing at night or noticing “tunnel vision,” you may be affected too.

Usher syndrome causes progressive vision loss from a condition called retinitis pigmentosa. Over time, your peripheral vision narrows, and nighttime visibility fades. But there’s hope. While there’s no cure, there are practical solutions that can help you stay safe, independent, and confident.

Here's How Low Vision Care Can Help:

Custom glasses reduce glare and improve usability.

Devices like E-Scoop glasses use special tints and prisms to move images to the healthiest parts of your retina. These lenses also cut down on glare, making nighttime and low-light environments easier to manage.

Orientation and mobility tools support your independence.

Using an identification cane lets others know you have limited vision and helps you navigate safely. Combined with mobility training, it can make a big difference in your confidence and quality of life.

Awareness leads to empowerment.

Campaigns like the one in Times Square remind us that vision loss doesn’t have to mean isolation. You're not alone—and support is available.

At our low vision clinic, we’re here to help. Our low vision optometrist is a proud member of the International Academy of Low Vision Specialists (IALVS) and offers personalized strategies and devices for people living with conditions like Usher syndrome.

If vision loss is affecting your daily life and preventing you from utilizing your sight to its fullest, contact us today to explore personalized solutions.